I was woken from my sound sleep this morning by a phone call from a panicked mummy.
Her lift had somehow not picked her up and she needed to get to work, so I threw on a bright pink jumper (bright enough to wake me up) and headed straight for the car in "Emily to the rescue" mode.
Stepping outside took my breath away, both due to the sheer air temperature and the beauty of the glistening outside world. I live on a fairly pretty world, and having everything decorated in what in my opinion looked a bit like sparkly lace was rather exciting. Last winter, I was lucky if I opened the curtains before 11 and would certainly not venture out of the house in cold weather as my lungs would instantly through a huge strop and start bleeding in retaliation.
Having not driven this early in the morning for rather a long time, I had completely neglected the fact that with cold weather comes something else: icy cars. I sat in the car and switched on the heater, in the naïve optimism that the ice would magically evaporate from the car. After 2 minutes or so when said ice showed no signs of doing such a thing, I decided brightly to “wash” the ice off by washing the windscreen; cue newly frozen sheet of ice on top of icy windscreen. I have no scraper, as I have never needed one before. Whilst I waited for the heater to work its magic I sat pathetically pushing the buttons to make the windows go up and down as if by some magic this would knock all the ice off (again didn’t work).
10 minutes later I was on the road and picked up a bounding and cheerful mother (if the jumper didn’t wake me up then she certainly would have) and we set off to her work. On the way we had to drive through a park, which was absolutely stunning in the low winter sunlight, frost all around. It sounds so daft to be so captivated but I genuinely missed all these sights for the last few years, due to old lungs despising cold weather (even though I have always loved it) and general poor health preventing much outdoor winter activity.
The last week or so has actually been really busy; I went to Birmingham to speak at a physiotherapy conference which was a great experience. I have a huge amount of respect for physios, because as health deteriorates they unwittingly become not only a physio but a source of comfort, support and council. I think it’s because whereas doctors and nurses are often only in the room for minutes, physiotherapy can take some time so you build up a very strong bond. I could not have got through a lot of my tough times without not only their physical support and symptomatic relief, but their help and guidance with my emotional wellbeing. Unfortunately I managed to have quite a few in tears again, but I can’t help it; I talk very openly about whatever is asked therefore some of it will be sad as certain episodes certainly were. I was lucky enough to meet a few physios who treat/have treated my friends (Robyn’s, Oli’s, Jess’s) which was lovely too.
Saturday I attended the Lord Mayors Parade on the Transplants in Mind bus. A really fun day, I was whooping and shrieking and cheering along with the crowds, as we handed out thousands of flags to people lining the streets. If just one person picks up the phone and registers after that then that’s potentially 9 lives saved…some pics of the day below. Stay warm!
Two really nice guys who had their transplants yeeears ago.
Sending some smiles!
2 months ago