Am having to do my own typing tonight, which is a shame as I could get used to lying there idly dictating my thoughts to some poor scribe. I suspect everyone will be pleased to hear however that diva-eque behaviour has continued in my medical care. Due to now having a drain on water seal (large bucket with water in which prevents air from reentering tube, v technical) and said bucket being on suction (even larger machine plus more tubing which connects to bucket and generates constant pulling pressure, in my mind dispatching many tiny men with rigging ropes to manually pull my lung up) I am once again restricted to my bed, and the immediate surrounding area. I don’t mind this at all at present, as the morphine combined with lack of sleep (this drain doesn’t like me lying down) means I am fairly dozy, so bed is where I want to be. This restriction being the case however, going down to X-ray was great fun and involved quite an entourage of equipment and people to carry equipment – I did feel the strong desire to don some sunglasses and carry a minute and rat-like dog in my handbag, but managed to restrain myself to slightly more “in patient” like behaviour.
Shortly after the X-ray, my doctor burst in saying “can I speak to the lady with two fully inflated lungs please?” at which (rather unintelligently) I looked at my sister, as if my doctor would really be that heartless and revel in my deflateyness by using it to distinguish between me and my visitor. Of course what she actually meant is a mere 24 hours after insertion, the lung is up! If I had the energy I would have whooped and danced for glee, but I am quite tired so did so inwardly and gave an energetic thumbs up instead.
For some reason (cant think why) they appear not to trust my lung anymore, so despite all appearances of inflateyness, the drain will stay in for a week now, to make sure that not only is the lung up, but that it is sticking nicely to the lung lining in an inflamey manner. Having spoken to the transplant team, it has been decided that injecting some sort of antibiotic to create even more inflammation and therefore sticky behaviour is the way to go, and wont throw any spanners in the transplant works, so the team have ordered the drugs from Germany (!) and I will have that done sometime next week. Quite a sore procedure I think but they inject local anesthetic with it so I’m sure it will be fine. And anyway who cares because for the first time in 56 days MY LUNG IS UP!
Apologies for slightly worse than usual English tonight, I blame the drugs and/or tiredness, plus the jam donut I just enthusiastically munched spilling sugar all over the place isn’t helping. Mind you perhaps I do just need a permanent personal assistant to act as my scribe…
Sending some smiles!
2 months ago