Welcome to today's update on the special little lady who is clearly in the running for "World's Most Popular Small, Pink and Sparkly Person" YAY!!!
There isn't really any major news but then that is actually the best news at this stage I think! Basically Emily is continuing to make progress and things are still moving forward in the right direction. An attempt was made today to wean her off the ventilator but she is not quite ready for that yet, so is back on sedation. However she is increasingly alert and there are no major problems. The next big step will be getting off the ventilator in the next few days.
I have been receiving lots of requests for the address of where to send cards and gifts to Emily and after discussion with her family they have come up with the idea of having a fund for Emily that people can send money to if they wish, rather than sending gifts and flowers etc. Whilst it is lovely that people do want to send these things, because Emily knows so many hundreds of people, they simply can't cope with so many individual items. Also flowers are strictly banned in the transplant unit for health reasons.
The money given to Emily's fund can then be used by Emily when she has recovered to start doing all the things that she has longed to do for so long - special trips away, days out, new activities to test her new lungs with, etc. I am sure she will tell everyone all about what special things she is using the money for when she is back to full health.
Therefore please can we ask that people ONLY send cards/letters to Emily and that if they do wish to give a gift they send a cheque MADE OUT IN HER NAME to the CF Trust's address (below) which will be put in a special fund for her. This will mean so much to her and offer her so many opportunities during the recovery process and when she is better.
The address for cards and letters is:
Hill End Road,
The address for cheques (made out in Emily's name including her surname obviously!) is:
Cystic Fibrosis Trust
11 London Road
Thanks once again to all of you for your messages of love and support for Emily and her loved ones. Her friends are also getting a lot of comfort from these messages during a tense time and before long the messages will also be being read by Emily too, so please keep them coming!
2 weeks ago