Just a quick update and small apology really - I know I am being really awful at replying to texts and emails at the moment, so sorry all you lovely friends who are contacting me only to hear nothing! I am feeling really quite rough, which is quite disheartening as true to my 5 year old nature, I got terribly over excited about being released and of course immediately assumed I would be back to normal. Unfortunately (but hardly surprisingly) I am not, and not only that but I appear to be back where I was when admitted, lying in bed puffing and panting with a rather painful ribcage and back, and back on my O2 mask. Humph. I would swear but princesses never swear.
The hospital think I need to come back in, I am not convinced, so we have compromised, they have doubled my steroids, and I can stay out for tomorrow - which is what I really wanted as it is my mother's leaving fitznells gathering and there is no way I'm not going to be there - and then I have to ring the ward sunday and report on how I am feeling.
As those of you who know me can imagine, I have that pouty sulky face on which I sport when someone forgets to feed me grapes or carry me around on a cushion or similar. I think the trouble is that my muscles are all just so tired from the effort of breathing. And you know when you sprain your ankle or something you arent supposed to put any pressure on it? Well I cant just not breathe to give my chest a break, which is probably where the catch twenty-two situation comes in.
Anyway am stopping moaning and getting a grip. And more importantly a snooze. Ooh, good news is that I put our Emily's Angels target up to £3000 and we crossed it straight away! Plus it is nice and sunny out which HAS to make you smile doesnt it?!
Organ donation week
2 weeks ago