Monday, July 21, 2008

Life is truly flying again, and I am loving it!

Last week myself, Oli and some rather fabulous LLTGL helpers held a talk at the Treasury in Whitehall. It was a fantastic event, organised by their disability committee. We scooted up to London, with me saying “I’ll be a lot calmer when we’re at the station/on the train/at Whitehall/in the main room" at various intervals, each statement proving to be an utter lie.

I spoke first, about LLTGL, Transplantation, the statistics and the fears of waiting, and then introduced our guest speaker C, who bravely agreed to come along to tell the assembled what it was like watching your father wait and hope for a new heart. The audience was silent as she explained beautifully that the wait for transplant is like a washing machine – most people would say rollercoaster but that implies ups then downs whereas with a washing machine you are pelted with all these emotions at once (trademarked by C, Oli and I shall now be begging to steal said description). As she reached the end of her talk, the emotion of it all surfaced and she broke down, and I moved up to the mic to finish her speech whilst giving her a gentle squeeze.

I cannot even begin to explain how much more of an impact it has coming from someone who is living the situation right here, right now and we cannot thank C enough for being bold enough to stand up there and pour out her heart to a visually moved audience. The whole afternoon was just fantastic and we will hopefully have several more events stemming from it so watch this space...

One thing down, one very exciting thing to go: Cabaret Favourites is a mere two days away and I am now officially petrified! We had a full rehearsal on Saturday and the amount of talent we have in this cast is just incredible. Wednesday should be a fantastic evening; I am starting to get really rather panicky about singing on stage myself (not a good start when encouraging others to do so!) I keep having this fear I am going to cough in the middle and then remembering my new lungs don’t tend to do that...we will hopefully have some pictures which I can post after the big day.

Things have been so busy that I keep forgetting that a week today I shall be sunning myself (well sitting nicely in the shade smeared in factor 50) in much sunnier parts! I am going on my first proper summer holiday...2 weeks in gorgeous Greece. We are returning to a place we often went to as a family when I was younger, so I cannot wait to go back. When I had my tension pneumothorax and they were trying to stabilise me enough to move me to the Brompton, I apparently asked my dad to talk about our little haunt in Greece and describe it to me to keep me calm. I am so lucky to be able to go back, and I can’t wait to see what it is like now, this time with precious new working lungs.


Anonymous said...

Emily, congratulations and keep up the great work. Mom, Dad and I were going to Ohio last weekend for a family reunion, but they cancelled at the last minute because they weren't feeling well plus the heat wave we are having, oh well.

Love, Randall

suzie said...

Congrats to C for being a very brave bod.

Now you know you can do this singing thing no problem, if you were nearer to me I'd teach you how to do it in monotone, now then I bet thats made you feel better about it ;-)

I love Greece, I love Greek food, I love metaxa & coke, you'll so have a fab time hun.


Anonymous said...

Best of luck for your performance! Can we get a video clip (wish I lived nearer).

Have a fab holiday - I love Greece! I'll be thinking of you from my cmpsite in Great Yarmouth ......

Audrey xx

Anonymous said...

Hope you hav a great holidAy (when do you go)
glad to hear everything is wel (with the exception of your kidnetys - but hopefully they will son be fine!)
hope your singing goes well (sure it'll be fantastic!)
jennie higgins

Jac said...

So glad the LLTGL team did so well, and well done C - Em has been raving about your speech :-)

Hope the cabaret is a roaring success!!


Sarah Milne said...

I am going to steal that metaphor too :-) I'm sure it will be used (with reference to where it came from) on my blog in the next couple of weeks as we go for our transplant assessment.

Have a great time in Greece - you SO deserve it. We will be at our assessment at the same time so I will think of you and all that we could have ourselves if things go well.

love as always

Sarah xxx

Anonymous said...

The concert was brilliant. Well done to all involved. I look forward to the next one!!

Margaret W

Anonymous said...

Thank you everyone for your kind comments :) couldn't have done it without the pink and smiley one. And am most pleased the washing machine was a hit! (As was the show, by the way...the entire cast want to do it all again please!)


Anonymous said...

good luck for your cabaret yeyyyyyyyyyyy 'go girl' just an example of how much you have been able to achieve post transplant :D

take care and be thinking of you hugz Elaine & Rach xx