Very sadly, my friend who I spoke about in the previous post past away. My thoughts are with her family and friends and she will be greatly missed. It is sadly another huge reminder of how much work and awareness raising there is to be done.
Onto brighter things, I had the most fantastic day today! It was my mother’s school summer fete and I went along because not only have they been amazing and supportive of my mum since she started there, but they are kindly giving all the money from the Raffle to the CF Trust. Laurence Dellaglio opened the fete, I got to chat to him a bit, he was very friendly and posed for a pic and said he was in awe of what I had gone through.
I accompanied my mother as she set to work on one of the stalls, and I enjoyed it so much I took over her shift and stayed there. People kept worrying if I was ok or if I was wearing myself out but I just love to have something to do and be busy, and I think because I am so used to doing things running on empty I now feel a bit like superman (oh dear the superman complex that Harefield have warned against). It was lovely to chat to all the children, and the parents who have been so sweet and bought me presents after my transplant despite never having met me. The committee had all purchased LLTGL T-shirts and so there was quite a few of us sporting them dotted around the fete. The weather couldn’t make up its mind and kept thundering intermittently but it didn’t spoil the atmosphere at all.
Then as a massive favour to us, Richard turned up to draw the raffle and thank everyone for their support. It was the first ever time he has seen me without oxygen. I turned round to see him, ran at him and he threw his arms around me, lifting me up as he did so, exclaiming “did you just run?!”. I don’t think he could believe it is such a transformation. I chattered away (hard to believe I know) till he had to go but not before taking a video of me on his phone for Judy who he said wouldn’t otherwise believe it when he told her! I jumped up and down whilst he was filming just to demonstrate what a complete transformation it really is. It looks like I might be on their show again in the next month or so, so watch this space…
So yet again today I was surrounded by amazing giving people who just want to help and want to support me and my causes…people in this world are really pretty great when you look closely.
The C Word
4 hours ago