Saturday, January 16, 2010

Jess.


I've started rewording this blog now for the umpteenth time so I'm just going to write; I keep worrying as to whether I am saying the right thing or not. I need to just write.

I am missing Jess very very badly at the moment. We texted back and forth most days and it hurts knowing she hasn't made it, that her glimmer of hope came too late. She should have made it, I think I am angry as well as sad, she should have had her call earlier. Four and a half years of clinging on is just not fair, and consequently, her body was just not strong enough.

Instead of going on and on about the sadness and the ache which is currently making me feel quite blank and flat (this is my blog, I'm allowed to be selfish) I'm going to talk a bit about what I loved about Jess and more importantly, what she taught me.

Jess was the strongest person I have ever met. Literally. When we went up to decorate her hospital room at Christmas, she was fighting so hard I have no idea how her body was doing it. Mentally, she never ever gave up either. She had a determination in her, a fire that made her so sure of her path and gave her such a focus. It inspired and motivated me to do more.

Jess had a huge heart. She was in hospital having a rotten time when I put up some sort of sulky status about something completely mundane I was annoyed with and the text came through almost instantly "Are you ok? Thinking of you x" Typical Jess always thinking of others; a memory that several other people have conveyed to me in their messages for her condolence book (which, incidentally, if you'd like to contribute to is open to anyone - no matter whether you knew her or merely knew of her and were touched by her - email me for more info). When I was in hospital for IVs this November, I texted her one day saying I was sending her all my mendy vibes and she texted back saying "no please save some for you."

She had a fantastic sense of humour. When Holly and I went to film with her for Battlefront, we spent most of the time being gently reminded by the crew that this was supposed to portray the severity of life on the list. It was hard as Jess' nature was to laugh and smile, and we all kept giggling and gossiping. We did get the filming done in the end and Jess' contribution to Holly's Battlefront episode - her frank portrayal of life waiting for lungs - was a vital one.

She reminded me what is important. Jess absolutely adored her family and her friends, and would tell people that they were special to her. When she decided to do something, she got on and did it, never mind whether it was practical, easy or virtually impossible. I think post-transplant, it is easy to loose some of that spontaneity, to forget to tell people regularly how much they mean to you. I intend to remember that.

I am definitely struggling with survivor’s guilt. I know it’s not uncommon and I’ve felt it before when losing friends with CF, but it’s pretty full on at the moment. Why on earth am I so special that I got this magical chance? I know the answer of course; it’s because there is no rhyme or reason. Just because Jess gave and gave and gave and fought harder than was probably humanly possible...effort sadly does not guarantee who gets the winning hand. Our paths were so similar in so many ways; both pretty stubborn, both fairly high-profile fights, then she decided to do the Hydro Active... I felt like she was a younger version of me. Perhaps because of that, I had a naive subconscious belief that she had to make it through, because I did, so it was only logical. I hate that I was lucky and she was not. I told you, my blog, my ramblings. My thoughts are with her incredible family and those closest to her; I cannot imagine just what they are going through.

Jess fought for what she believed in. She believed very strongly in organ donation, so instead of sitting around she got up and fought. And never ever stopped. Ever. That’s my biggest lesson; to live and laugh, to love those around me, and to fight for what I believe in. And to never, ever stop.



www.justgiving.com/jesswales

Images courtesy of Holly Cocker - thank you Holly x

10 comments:

Holly said...

I know how hard this was for you to right hun, but its perfect... a special tribute for a special lady. Thinking of you and thanks for all your support it is much appreciated.

Much Love, H x

Karen said...

A lovely tribute to one very very special lady. I think that following Naoishe's death Jess's fight and courage gave me something to think about and will her to get that much needed call so she could really live life, just like you are doing. Her memory will live on forever and everyone will continue her campaign to raise awareness on organ donation. You are all in our thoughts and prayers. Pink sparkly hugs to you. Karen xxxx

Megan said...

I'll bet that this was near impossible for you to write. But its perfect. I really wish I'd known Jess myself, but reading this post lets me know what wonderful person she was.

Thinking of you. Megs Xx

Molly said...

Beautiful blog post Emily. I know how hard it must have been for you to write. I hope it's ok that I've linked to this post on my blog.

Hugs,
Moll x x

smudge said...

A beautiful tribute to a very special fighter. I feel honoured to have met Jess and to have walked the 5k with you both and the rest of Team Jess in September. Can't begin to think how hard this was for you to write. You're a very special person and a great friend to Jess and so many others. Take care. L xx

Anonymous said...

I also feel guilty for being twice her age with a good lung function. No rhyme or reason. Doesn't make it any easier tho.

Hugs, it is such a sad and frustrating time.

Jess was one in a million.

Audrey xx

Post Pals said...

Hi Emily, I was so sad to hear that Jess had passed away, I had followed her battle for a while and although only swapped the odd comment on facebook I was really sad to hear the news, like so many others I had been hoping and hoping her call would come and when it did I hoped that it was the start of a new beginning. I can't begin to imagine how hard it is for all of you who were close to her and loved her.

I read a blog earlier of one of our Post Pal families, the Mum wrote that she was inspired to register when you were in need of a tx, and her husband has now because of Jess. I think that says volumes about the 2 of you.

All my love,

Vikki

Anonymous said...

"Why on earth am I so special that I got this magical chance?"

To give a voice to those that didn't.

x

Anonymous said...

Beautiful post, thank you xx

Sharon said...

Hi,

My name is Sharon Ray and I am the assistant editor of Cysticfibrosis.net. I am contacting you today in hopes of developing a relationship with your website; we have seen your site and think your content is great. Cysticfibrosis.net offer a free informational resource to both the general and professional public on this terrible disease.

I hope you show some interest in building relationship, please contact me at sharon.cysticfibrosis.net@gmail.com.